friendships

Big Things Weighing Me Down

My Dad and His Granddaughter

Hello Good Readers! First, let me start off with a quick but heartfelt apology. I promised I would go back to posting at least once a week and I haven’t done so. I have been facing something very difficult that I now want to write a little about. My Dad, who is turning 85 soon, after a long life of being loved by just about anyone who knows him, is starting to succumb to dementia. It is very distressing to watch someone go through this, but especially someone I love so much and need in my life so much. In all of my 50 years, he was there for me, he cooked hamburgers on the barbecue on hot days like we have been having, he drove me and the rest of my family on trips as close as the mountains 350 km away and as far away as Southern California. He has never failed to be strong yet caring, and constantly funny. Now I see him turn into a scared, teary-eyed frail old man. I know there could be worse things to happen in life. One could lose a child to schizophrenia as one of my co-workers at the Schizophrenia Society did not too long ago. One could have a grandmother who screams and yells and makes no sense and is 100 years old and has to stay under the care of her daughter like my dear friend Charity’s mom has to with her grandmother. I think what makes this hard for me is that I work in a psychiatric hospital and I work with people who have schizophrenia. There are some similarities to what my Dad is going through to what people with mental illnesses experience, but for some odd reason, you can’t make dementia better with medications like you can with schizophrenia. All you can do is try to make the person as comfortable as possible as they slowly lose their faculties.

It hasn’t been easy that I have been at odds with my sister. I spoke to her yesterday and she basically told me that I am no longer welcome at her house and I got so upset I hung up on her. For some odd reason she texted me later on and again a couple of times today. It makes me want to fly into a rage when I run across people who do this, especially because I know she is doing it because I have a mental illness. One time I had a friend I went through so many good and bad times with and seemed to be closer to than just about any friend I had and he did the same thing. I called him up years after we had last talked and he said that it was nice to hear my voice and that he didn’t want any hard feelings between us, but he still wanted to tell me to fuck off. I asked him if I waited two years and was still stable if I could call back, and when I did he called back when I wasn’t home and left an incredibly demeaning message on my answering machine, again telling me to fuck off and saying that I had “gotten his family all upset.” But I suppose in some ways this is a good thing. I don’t need shallow, self-centred people in my life, and I definitely don’t need people who don’t understand what a mental illness means. Can you imagine someone telling their younger brother that they will never be welcome in their home again because they are in a wheelchair? Or if they have cancer? I never asked to have schizophrenia and I like to think that I have turned my extremely negative situation into something positive.

I have to admit though that in a way a small dream came true in my life a couple of years back. In my last year of school, I had a friend who I argued with a lot but respected and ended up working with at a restaurant and connecting with years after school ended. He also cut me out of his life but he had been told to by a psychiatrist, and when I finally gathered up the courage to call him some 20 years later, he didn’t care what a psychiatrist said, he wanted to be my friend. He is a busy guy and we don’t get together much but we have had some really great long talks about what it was like to attend high school together and some people we grew up with. So I try and understand things from other people’s perspective.

It’s funny though. I accept that I have a mental illness, but I am really a very lucky person. My illness is extremely well controlled by medication. I also have diabetes which is also pretty well controlled. The only thing I really have to deal with is the side effects. And the assholes. The world will always have assholes though. Thanks for tuning in dear readers.

If anyone out there is thinking of doing some writing of their own, I thought it might help to give you a bit of the advice I received when I was just starting. The person who gave it had graduated from a journalism program. What it basically is, is that you read a lot of magazines (best to read them at the library) when you find a magazine that fits with something you would like to write about, find out who is the editor and assistant editor of the publication. In the case of larger magazines, it might be better to approach the assistant editor. You write to them, tell them what kind of article you would like to write, why you would be a good person to write it, then start your research. It can be good when you are starting out to read a whole hardcover book on the subject before writing the article. Then do a lot of web research and make sure the accepted facts match what you want to write or ‘argue’ about in your article. Then write. At the end of each statement or paragraph as needed, put in the url link to where you found the facts so they can be checked. Start with an anecdote, the more real and gripping the better. Then say what you want to say, then say it, then tell the readers what you just said without sounding like you are talking down to them or using too technical or specialized language.

I have found that one of the best places to look for places to send your pitches is the Medium platform. It costs $5 USD a month to join, but there are tons of articles full of information about editors who are looking for content. After you have written and published a couple of articles, take the extra money they made you and look into a night class or a library Gale course or a community college continuing education class about journalism and bootstrap your way up the ladder. I have written about four articles this month alone and it really feels great. Tune in here for more writing advice as I go, I will repeat my promise and say that I would like to write a blog entry here once a week, sometimes more, sometimes less. But thanks for tuning in!

Sacrificing For Those We Love: It’s About Our Mental Illness and Their Caring

Some of you may have heard me talk before about my dad. When I had the worst hospital admission of my life, he was there for me. He would drive all the way to my apartment, across town, and then we would drive to the beautiful Edmonton River Valley for a long and soothing walk. He did this with me for a very long time until I was fit enough and well enough to go places on my own. Just that little bit of company and that little bit of exercise was enough to put me through a powerful transformation, recovering almost 100% from my hospital stay.

Then, yesterday, it was time to celebrate my dad’s birthday. I can’t help but notice he seems a little shorter, a little more helpless, but no less funny and kind and lovable. He was turning 83.

I think my dad somehow understands that he isn’t going to be around forever. I don’t think he ever imagined me, the youngest, would be taking him out for supper near my 50th birthday, but he is starting to understand. It is getting harder for him to concentrate, he forgets things more and more. There will be a time some day soon we will have to look for a place for him to live that has more care.

Something that is very important to remember is something that a young woman who was studying social work told me a long time ago: “The worst thing you can do is use your illness as an excuse.” I think, for me anyway, that being the best writer, best son, best friend, best brother, and all of those things are extremely important. Sadly though, there was a time in my life that I didn’t live up to what was expected of me on these counts, and I lost friends and girlfriends, and I almost made my family sick of me.

I think it can be a good idea to find someone, be they an actual family member, or even a fictional character on TV that you admire and use them as a foundation for how to treat your loved ones. Now, all that is good, but there are some things a person can do that will almost guarantee they will have good friends and that they will be close with family members.

  1. Be able to listen just as much as you talk, and even try and talk less to your friend or loved one than they speak to you. Listening skills have to be cultivated, and it is so important to give each person the ear they deserve.
  2. If you can’t work full-time, try and work casual or part-time. Be careful with your money but not cheap. This seems like an irrelevant point, but the truth is that if you never have any money of your own and you end up making friends or family members pay for you, they will want to have less and less to do with you. A little money is also good for things you may want like a second hand mountain bike or other wish items
  3. Having a job (or even a volunteer job) pays back in a few ways, it will make you a more interesting person. Who wants to hear the run-down of the latest TV shows each time you meet up with them? Volunteering is also a great way of building skills for a future job that may be just what you dreamed of.
  4. Keep drinking or drug use to an absolute minimum, and if you smoke or vape, do your best to stop. Doing these things will increase your worth in the eyes of your friends and loved ones (unless you currently hang with the ‘wrong’ crowd, which I suggest you work on changing). If you moderate and quit these things, so many barriers come down for you, and you will definitely have more pocket money. With the price and danger of smoking tobacco or vaping, quitting is almost a no-brainer, but I want to emphasize you can’t get feeling better or be in a better financial situation than you will be in if you stop smoking.
  5. If you are able to stop smoking or vaping, and you are not physically disabled, getting involved with sports can be a great thing to do. I personally have osteo-arthritis in my knees and I have a few health issues from torn cartilage in my feet to a thick head, and I am still able to walk long distances and to go swimming. Doing these things not only opens a new world to me in things to do, it has allowed me to meet and get close to some pretty wonderful people.

Well, that is about it for today, I hope you got something from all that writing. I think I could close in saying one of my favourite modern phrases:

Use things and love people. It never works out the other way around.

 

Mental Health During Times of Pandemic and Isolation

Right now, I know that a lot of people are hurting. My heart goes out to young people who are caught in a trap most of them don’t fully understand. I have a neighbour, a brilliant young man who is going to University while his family is taking on a work term from Denmark. He really is missing out on so many of the things that makes University such an enriching experience, from the sports to the interactions, parties, and many other activities. On the other end of the educational grid, elementary students are extremely tough to manage and so many parents are opting for home schooling.

What I feel is a little more relevant is how all this is affecting those who suffer from mental illness. A lot of us already isolate and now it is getting worse. The Canadian government has pledged a very small amount of extra support for people with disabilities but still aren’t being very clear about when or how they will be doing this. I really fear the possibility that this is going to go on for years more. When one figures the impact on not only our own wallets, but the government’s resources, and the economy’s resources, it seems that something will one day have to give.

I like to think of myself as a source of advice but in this case I really don’t know what to say. When you have a mental illness, first and foremost you need to get your medications right. If they aren’t, you are going to have to get after your psychiatrist (I now meet with my doctor only over the phone which isn’t nearly as good as in person) Once again I feel for my American readers who don’t have the resources I have access to in Canada. If I have serious issues, there is no question of getting in to see a doctor, I have numerous options available. I recently had a physical health problem and ended up using my health care number to contact a physician over the phone and get a. prescription called into my pharmacy. I put my mental health as my number one priority. Even if I lose my home and sleep in a garbage bin I will still take my medications and see my doctor, and follow his advice. I also feel it is so important to do all the research you can, and set up supports as much as possible. One thing I recommend for anyone is to join an organization like the Schizophrenia Society, and take all the free courses and take out all the library books you can about your illness. You can get through this, it just needs time, work, patience, and perseverance.

Next to my strong desire to take my medications, see my doctor and maintain a good diet with exercise, is very simply, my apartment. I had to wait a long time to get into this place, but it was well worth it. I now have a huge apartment (for my needs as a single disabled adult) and my rent is very low. One of the things I would strongly suggest to add to approaching the Schizophrenia Society is to join or start a group on Facebook for others who are in the same physical, mental, or financial situation you are in. The government plan to give money to people with disabilities in the province I live in is called Aish–Assured Income for the Severely Handicapped. There is a Facebook group just for those getting it and it helps me a great deal. I get to connect with people, I learn about new programs and subsidies, information about housing, and much more. One of the more recent things it has helped me with is getting my Internet bill lowered greatly under a new plan for people with disabilities. I now pay just $10 a month for Internet compared to $80. That $70 buys groceries, the odd 12-pack of diet cola, or whatever I need.

So, if you can find it, put your name on a list for subsidized or co-op housing as soon as you can. Every dollar you can save counts. I think it is kind of obvious to state, but it is also a really good time to look at habits. The cost of cigarettes in Canada has gone through the roof, along with gas and alcohol. I don’t want to demand anyone give these things up, but the way prices are, you may find if you do some calculating, that you could afford some stuff you really desire if you find help in putting aside your vices. Imagine taking a penny-pinchers trip to Hawaii or a train ride across Canada. These things are possible if you can manage to quit some of your habits and find a part-time job you can handle.

I do suggest that if a person is able, a part-time job is a great idea. I work on a casual basis for the Schizophrenia Society and also have a two-hour a week job as a computer tutor. Even this little bit of work feels stressful sometimes, but it has allowed me to get a lot of things and do a lot of things that would be impossible without them. Volunteering is an alternative that should be considered. If you volunteer, you pretty much pick what you want to do, and when you become good at it, there could be a paid job in it for you down the road.

The last topic I wanted to mention is entrepreneurship. I hope this is something that people with mental illnesses are free to do wherever this blog is read, but I am not sure. Entrepreneurship is when you make your own job. The simpler forms of it are collecting deposit bottles and asking for change. I heard of one guy who will stand out on the road and ask for change and one day out of the year-near Christmas, he can rake in $1,500.00. I don’t recommend this approach, but it is an example of something that can be done if there is a true need for funds, especially around Christmas when you want to buy family presents or have a large meal with guests.

There are many kinds of entrepreneurship. One of them is to do what I have done and write about your experiences and have a few copies printed to sell. You really have no idea who your story could help until you try. It can be a long process but extremely rewarding. One of the best places to start if you feel you are ready for a regular job, even if only part-time is to apply at Goodwill. They have a strong reputation of hiring disadvantaged people. I know one person who made enough after a lot of saving to buy a second-hand luxury car and a top rated motorcycle. Once again though, I have to remind you that none of this will matter if you aren’t taking care of your mental and physical health.

Something I have been a part of is putting together a collection of poetry. The first step in this journey is to get involved in local poetry events (or short stories but poetry can be simpler to put together) once you meet a few poets, get one or two to help you set up a contest and then canvass the businesses in your neighbourhood to donate prizes or funds to rent a space to hold the giveaway night. Put the word out that you are looking for poetry, and that there are prizes to be won, then make a simple zine with the poems in it and you can charge $5 or something after the contest is over for the books, and keep the profits. I did this twice, and I met a lot of people and I like to think gained a lot of respect from people in my community. Something that I have seen being done in many cities is for homeless or impoverished people to have things like a poetry zine or a newspaper that they can stand in the street and sell for a fixed price or donations. One many I knew that did this in a popular part of town often would come into a pool hall I went to with a wad of cash. Even if you make just a small amount of money you will feel you earned it and feel better about yourself, and have esteem in the community. These projects can take a lot of work, but there are people out there who want to help and volunteer to help. The important thing is to never take on more than you feel comfortable with. I have to make sacrifices often to get through the month on my 2-hour jobs, but as I’m nearing 50 I don’t mind so much not going out to a bar on the weekend and spending my time reading books I get from the library.

And so, dear readers, that concludes today’s blog. I wish you health and wealth and happiness. Feel free to write any time and suggest a topic for me to write on. My email is viking3082000@yahoo.com

 

Rebuilding Your Life After Dealing With Severe Mental Illness

my beautiful northern city. Don’t forget to download your free ebook copy of “Alert and Oriented x3” by clicking on the photo of the tower bridge on the right side of this page!!

 

Sometimes it really can be such a difficult thing to emerge from a hospital or to go through treatment for mental health and addiction and then have to start your life all over. One of the big things I recall was being young, not believing I had a mental illness that needed treatment, and not taking my medication or even bothering to get my prescription refilled. Time would go on and I recall these episodes. It is so hard to explain them to someone who hasn’t experienced bipolar disorder. I would get into social situations and talk and talk and think I had really impressed the people I was talking to, or at the very least entertained them only to find out at some point that my mental instability at the time was extremely apparent. As a young man of 18 I once hitch-hiked to the coast (Vancouver, BC) and lived in a traveller’s hostel. I would get so engaged in conversations with travellers from all over the world that I can recall at least one time when I talked right through the time to get to the kitchen and had to spend the night hungry.

There is another thing, talking to ones’ self. I don’t always see this as an indicator that a person is mentally ill, a lot of people keep up an internal dialogue, but there is a line that can be crossed. One of the things I remember from my teen years was sneaking downstairs in the townhouse I grew up in with the purpose of watching TV. Sometimes my dad would have already gone to bed, and sometimes he was awake and in his chair and I would hide in one of his blind spots and watch TV. There were a few times that I saw my dad do things that seemed pretty disturbing, he would carry on speeches in his chair to people he knew, sometimes he would even sit and say things directly to them. My dad to me and to many was a pillar of sanity, good coping skills and good mental health, but later a doctor told me that talking to yourself is a clear indicator that you are mentally ill. I don’t agree with this in my dad’s case, my dad was the kind of person who believed in a lot of self-confidence and self-awareness concepts and I really think he was just using his isolation time to build character.

Me however, with a clear diagnosis of a rare combination of anxiety, symptoms of schizophrenia and symptoms of bipolar disorder, and a number of hospital admissions under my belt, had two experiences. One of them was when I thought about the past or was on my own and I would say things to see how they sounded. This was likely at the very least a mental quirk, but then there was another time when I thought people were filming me or listening in on what I was doing and my mental health deteriorated to the point where I was not only delusional, but thinking that if I talked it would be recorded and that I could change things as vast and different as international political policy to how people I knew from my home town were being treated. I was deep in it.

After a person goes through treatment for a mental illness, they need to tune themselves into the idea that communication only really takes place in the standard ways. Talking on the phone, talking in person, writing to someone, and with the influence of the Internet, chatting, texting and other methods. It can be hard to accept that you aren’t important enough to have a listening device in your tooth that follows your every word, but that realization is a long step towards mental health. For me it always seemed to come with medications.

So, looking back again to times when I wasn’t being properly medicated, I really thought I could do anything and there was very little that could tell me otherwise. I went into debt to attend commercial pilot school even though I knew I couldn’t pass the required medical. I was starting to gather information about how to get work on films in Vancouver and work myself up like a friend did from an extra to a stand-up comic to a real actor. But after I fell ill again, and after I was properly medicated I was so shaky, nervous, ashamed of my illness that all of those things became impossible.

One of the most important things about recovering from a mental illness is to have money and something to do. I can recall bouncing back quickly and finding a temporary/casual labor outfit that could get me day work that paid halfway decently. At the very least, this work helped me to meet new people, got me out of the house and helped pay my bills which were mounting. I don’t know if it is the same in every city, but I know in Vancouver and Edmonton there were a number of places that could set a person up with work for one day or one week. If you want to get full-time work, this is an excellent place to start because they will hire just about anyone and give them a chance, and then once you have a good reference, you can use that to get a better job.

Not always is it the best idea to get work right after getting out of the hospital though, but something that is really important whether you work or not is to have friends. I had a few friends that I was able to visit or invite over for video games or meet for coffee, and having these friends really got through a tough time. This is somewhere I really want to commend my dad again because he used to drive across the city, pick me up, take me to the river valley and walk and talk with me almost every day after a very serious hospital admission and the positive effects walking and bonding with someone I love were incredibly healing over time.

I think what a lot of people should have when they leave a hospital or treatment centre is a few goals. They don’t have to be huge, they can simply be rewards. “I want a new computer” “I want to take a trip to the West Coast” I had these goals, and with the help of my dad’s credit card and the part-time work I got to pay him back and save for these things, I was able to accomplish them. I had such great times going to Victoria or Toronto. When I was in the hospital I was seriously worried that I would never do the one thing I loved the most again: travelling. Instead of stopping travelling, I quit smoking and didn’t drink or have any other expensive habits, so I was able to save, work part-time and go to Hawaii twice and London, England. These were such incredible experiences I will never forget.

When a person gets out of the hospital or treatment centre, they can have few friends, feel discombobulated by their medications, and be very ashamed about having an addiction or illness or both. Now is the time when it becomes so important to take steps to build your life up again. If you had a drinking or drug problem, seriously consider a 12-step program like AA or NA or even CA. Getting out and meeting others who have the same goals you do and being able to tell your story to others can be incredibly healing. Another thing that I did which I would recommend strongly is, unless you have family members you can live with, consider finding a group home to live in. One of the best things about a group home is that everyone there will either have a problem or is trained to deal with the problem you have. A lot of healing can take place.

Well, dear readers. That is all for now. Thanks for sticking with me this far. If you have any questions, comments, requests, please feel free to direct them to viking3082000@yahoo.com I would love to hear from you!

 

Leif Gregersen

Alternative Recovery Strategies For Schizophrenia and Bipolar Disorder

Before I begin, I just wanted to remind my readers and new followers that my latest book, “Alert and Oriented x3: A Snapshot of a Severe Psychosis” is free to download and share and can be gotten by clicking on the photo of the bridge with two towers to the right of this blog.    ——–>

 

                                               Tanya Behm, my incredible boss at the Schizophrenia Society

Let’s admit it–Covid-19 is on everyone’s mind these days. For those of us who have mental health issues, the isolation can be almost like a prison sentence. I know I am really having a hard time because I have a dear friend who I was starting to get to trust me more and realize more that I am a person before I am a mental illness, and because of social distancing and my friend’s need to take care of family members, we haven’t been able to get together in ages.

I would like to say though, that having this time to myself has really sparked some incredible creative spurts. I don’t know how many people who read this blog are writers themselves, but I am guessing there are a few, and I am also guessing that many others could benefit from using creative writing in fiction or non-fiction, or poetry. Something I have been doing is I already had a full set of the Twilight Zone videos, and I am going back through them to watch over. There is something sort of magical about those old Teleplays, one shot, one episode was all the writers had to grab people and shake them out of their boots. I also have been watching “The Outer Limits” on Netflix and sometimes the original Star Trek as well. The thing is, whether you are in space or in the backyard of the girl next door wondering why she suddenly grew an antennae, when you delve into the world of the imagination, you are getting out of your house if only for an hour.

Time in isolation is so difficult for people with schizophrenia and bipolar (and just about any other major disorder including depression and so on). It can become important to force yourself to do something. I used to keep my mind active by getting a book of variety puzzles at a magazine stand. I loved to solve logic problems, and decipher scrambled letters (anagrams I think but I’m not sure). And thanks to some kind souls, I also have some pencil crayons and an adult colouring book. Despite all the things I could be doing, sometimes I find it really helpful to just tune the world out and sit down and colour in some pretty flower patterns or whatever. It becomes a way to leave my world without leaving. I even remember being in a very serious ward in the hospital and a young guy convincing me to sit down and draw a picture of a lion. We both got into the task and halfway through he said, “See, we’re no longer in a mental hospital.”

One of the best things I could recommend to people who read this blog who haven’t already done so is to start a blog of their own. It is possible to get a free or low-cost website as I did through WordPress. Mind cost me some to start up but then I found a free course from the Library that allowed me to use my own knowledge to maintain and update my website. Now what I do is take pictures as much as I can, then use the best ones to introduce a topic and share my experience. There is something very powerful about sharing your story with others. Those people often become close friends and share their own stories and before you know it a bond exists. This is why support groups an 12-step groups are so effective, the main thing they do is share their stories of what life was like before they recovered, how they recovered and how their lives are better now.

So, if you get a blog, keep a journal. Write down ideas that come to you of things to write about that week or that period you want a new blog to come out. Use your story, and do some research on what has worked on that topic for others. There are so many formats to choose from, one that has always interested me but I never explored was to have an advice website where people write to you and ask questions and you answer them (of course anyone who does want to ask me something they want to see here, feel free to contact me at my email: viking3082000@yahoo.com) then you can try to add posts on a regular basis, and the world will soon open up a door for you. I had so many opportunities stemming from this website, from being hired as a managing editor of two online mental health magazines to simply growing a following of over 600 people. But writing can do so much more for a person, even if they never publish a thing,

Most psychiatrists will recommend to a patient that they keep a journal just as I do to my students (I teach creative writing at a local psychiatric hospital). This has power because a journal can become a friend you can talk to about anything. You may be ashamed to admit that teenagers upset you when you first leave the house in the morning and see them smoking and hear them laughing, but you can always express these feelings in your journal. Once saved, you might one day be able to go back over that journal and possibly get an idea of writing a short story about a man who gets taunted by teenagers but is in fact a scientist who shrinks them down to tiny size to teach them a lesson. As you keep writing things like short stories or poems, these kinds of ideas will come to you.

Something else I have as a hobby is model building. I love to assemble tiny reproductions of airplanes from famous battles. This sort of thing takes time, energy, and concentration, and when you are done you can get a bit of wire and hang your creation from your ceiling to show it off. Really anything that engages you is great.

This is the point of my blog where I usually start talking about going to the gym and the pool. But in Edmonton where I live, all pools and gyms are shut down. I have been trying to take up the slack in my exercise routine by walking long distances. Sometimes I will make an excuse to visit my dad or a store on another side of town and then walk all the way back, even if it adds up to ten miles or more. There is something so empowering about the rhythm of each step, the feel of sun on your face and being able to breathe fresh air. I have learned to make my own mask to wear by watching the below video:

Surgeon General Shows How to Make Face Mask

I would actually like to see face masks become mandatory, but, along with social distancing, they are the best way to prevent the spread of this deadly virus we have going around. What I do also do when I go out for my long walks is I take routes where there are few if any people on the sidewalk. Long-distance walking can become tiresome and time consuming, but if you have no other way to exercise, it can be a lifeline.

It is also important to keep your strength going, the way I have been able to do this without going to the gym is buy purchasing a couple of ten pound dumbbells and doing twenty or thirty repetitions of a circuit of lifts, and then adding in some push-ups and even using a chair to use ‘dips’ to strengthen my arm. I have also found it useful to shadow box using my coats as a punching bag. Once again, anything that pushes your limits, engages you, makes you feel healthy is going to make your life easier.

With just a quick Internet search, I found a few resources on something else that could be helpful, online resources, information, and support groups for people with Schizophrenia. The website is at:

Please click here for more information

I encourage you to try this one and look deeper. And please come back and share your experiences with me, I would love to hear from you. In the mean time, please download my eBook “Alert and Oriented x3” by clicking on the photo of the Tower Bridge and let me know what you think of it!

Best,

Leif Gregersen